A week ago Friday we went to the cardiologist. He said her lungs and heart are healthy. He said she still has a pin hole in her heart from the left side to the right side, but not to worry. I guess 1/4 of the population has that, so he said there was nothing to worry about. He told us to try taking her off oxygen in the day and watch her. We have done that for the last week, and she only requires oxygen if she is in the swing and at night.
Overall she is a very good baby. We love her so much. We went and did the buddy walk for her last saturday. It was a lot of fun. There are some pretty incredible people in this world. We have raised $889 so far.
I was taken to task a little this week by someone who read the blog. In regards to my "What is normal" post I was told by making this blog about Alea and not the rest of the girls is focusing the attention on her and using her condition for attention. As I go forward with this blog I intend to bring stories of our son Austin and more of Keena and EC into the mix, but for now Alea is at the forefront of all of our minds so she will be the focus of the updates.
I would say I am sorry for not more of an update, but I am thankful there isn't much of one as Alea seems to be doing really well. We will bless her next week. We are looking forward to it.
This week in Pictures
Great pictures of al the girls - they are all beautiful and precious and what a neat day to remember. Tell them Aunt Karen loves them and misses them.
ReplyDeleteI don't think you guys are looking for attention at all. You are just trying to process your experiences and share that. Your other girls know you love them very much. You are doing wonderfully! Glad things are going well with the oxygen.
ReplyDeleteOh, Jason said succintly what I was going to say in a wordy way.
ReplyDeleteBut here I go nevertheless. I like that you're keeping this blog mostly about your baby. The other girls can share in the family blog. I see this blog being about what it's like to raise a child with Down Syndrome. I've always wondered what that would be like. Is the development process the same? Does a Down Syndrome infant cry more, less, the same amount? What are the frustrations and joys? Plus, should someone else in your family or outside your family go through a similar experience, they can read your posts and cry, laugh, and be in awe of the road less traveled. Keep 'em coming, Chris and Jodi! I love reading all about it. And in my small little way (uh, mainly just through reading your posts), know that I am cheering you along the way.